We promised no update unless there was an update … so … Kristi developed a very severe headache and her doctor advised us to go to the ER yesterday morning. We went to Stanford where she received IV pain meds, steroids, and electrolytes. Doc is going to have her take a one week break from the daily pill she takes as part of her current treatment regime — that was our request. We want to know if that is the cause. Good news: she’s a new women again today. We hope we can continue to dial things in for best treatment and least side effects.
Kristi had both head and full body scans on Monday. There isn’t much to wax philosophical about. The doctors called it fairly stable and want her to continue with the immunotherapy treatments. At this point there isn’t much other choice. Unfortunately, headaches have taken over as the most prominent problem. Some good news is her back pain has become less of a problem in recent weeks. We shan’t even try to venture a guess as to why. She saw her pain management PA today who thoroughly discussed the headaches, prescribed a new drug to try, and will reach out to Dr Ganjoo to fill her in on the problem. Although it may not seem like it from the tone of this post, we were pretty happy about seeing some shrinkage of tumors, especially in the lungs. Having cancer is one thing, suffering from side effects of it or the treatment is quite another. She does have days without any headaches — which we relish. As usual now, we ran the results thr...
Kristi and I took the grandkids for three days to Santa Cruz this week. We had a fun time and it was exhausting. Kristi did pretty well. Took a nap on the beach the first day and powered through the second full day. She was tired and had a headache on the way home. For the most part, she kept up with the busy few days — and we had fun. We did some research on the way home and decided to change the timing of her daily meds. Since being home and the change she hasn’t had too bad of a headache. Fatigue is always an issue, but at least one that has a simple remedy, sleep. It’s to be expected — mostly side effects of the treatments and probably some from the cancer itself. The immunotherapy treatments will continue — the doctor called it maintenance —a shot every four weeks and the daily pill. She’ll have scans again in three months. Until then, we expect and hope for no news. So, we won’t likely post unless there are any changes. As usual we take things one day at a time, ...
What a hottie 😍😍 love ya Amiga 😘
ReplyDelete❤️ love you too! Thanks for the smile!
DeleteI need a DD hat for games this summer. This pirate look is ok, but a ball cap seems like just the thing for the games.
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DeletePraying for you, this to will pass
ReplyDeleteThank you!
DeleteLove it!!!! You are such a rockstar Kristi! ❤️ Donning
ReplyDelete😊 thanks!!
DeleteBarney Fife!!!! Thanks for the nice thank you card.
ReplyDelete😊😊. Barney Fife!!
DeleteYour still beautiful both inside and out! Love and miss you friend....
ReplyDelete❤️. Thank you. Right back at you. So nice to talk to you earlier!!!
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