While we don’t have a lot to say, it’s going to be at least a few weeks yet before Kristi’s next full body scan, so I thought I’d send a little update. Last Tuesday Kristi had an MRI focused only on the tumor(s) on her vertebrae. This was in preparation for a Cyberknife (directed radiation therapy) she had on Friday. The MRI showed significant growth of the tumor(s) on her spine. This makes us anxious for the full body scan that is not yet scheduled. The Cyberknife procedure was not too difficult, and the side effects seem less that we were expecting. Although, she says it feels like someone hit her on the back with a bat and she is a little more fatigued than usual. The goal for this procedure is pain reduction. The general consensus now is that her regular “back pain” must be from these tumors. If this procedure doesn’t have any pain relieving effects, she will be having a different treatment from a Stanford pain specialist in the near future. We just hav...
Jim and I have recently returned from a wonderful road trip. We visited 21 states, some of which neither of us had ever seen before. The very first day of the trip I had several appointments at Stanford. One of those was to have my PET scans done. We received the results and I met with my LMS specialist to discuss them earlier today. There were a couple of results that we enjoyed reading. Namely, most of the tumors in my lungs remain stable. It’s always good news when lung tumors aren’t growing. Unfortunately, the good news ended there. The scans found that I have many new subcutaneous tumors in a variety of locations across my body. I’ve had several on my scalp for the past year or two. There are quite a few more there. They’ve also begun growing in several muscles. Perhaps the most disappointing are the numerous new metastases growing in my bones, notably in my vertebrae and hip bones. Those appear to be growing aggressively with many new tumors needing our attention...
When I was a little girl I used to tell my grandfather, Papa, about all the books I read and the fantastical places in those books. He told me, “You have wanderlust; don’t worry, you'll see the world someday.” Well Papa, I’m giving it one hell of a go! A pic from our recent trip — standing in the smallest country in the world. As many of you know, I had my full-body scan earlier this week, and we received the radiologist’s report today. The scans revealed growth in the existing tumors, along with the appearance of several new ones. While this isn’t entirely surprising, it’s still disheartening. I’ve noticed that some of the tumors on my scalp have grown significantly over the past few months, and I feared they might reflect what’s happening with the internal tumors as well. If you’re not familiar with it, Leiomyosarcoma is a miserable and aggressive disease. That said, I’m grateful that the tumors in my lungs, according to the pathologist’s measurements, don’t seem to have ...
What a hottie 😍😍 love ya Amiga 😘
ReplyDelete❤️ love you too! Thanks for the smile!
DeleteI need a DD hat for games this summer. This pirate look is ok, but a ball cap seems like just the thing for the games.
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DeletePraying for you, this to will pass
ReplyDeleteThank you!
DeleteLove it!!!! You are such a rockstar Kristi! ❤️ Donning
ReplyDelete😊 thanks!!
DeleteBarney Fife!!!! Thanks for the nice thank you card.
ReplyDelete😊😊. Barney Fife!!
DeleteYour still beautiful both inside and out! Love and miss you friend....
ReplyDelete❤️. Thank you. Right back at you. So nice to talk to you earlier!!!
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