Reality


Kristi’s pain is more under control than it was yesterday. A nurse spent a couple hours with us last night working on adjusting her meds.

I use ChatGPT to understand complex medical uses and brainstorm what to ask drs and nurses. I asked it to help summarize Kristi’s current condition in order to accurately share with you all. This is the summary:

“Kristi is likely in an advanced stage of her illness.
Her cancer has progressed to the point where her body is slowing down and using most of its energy just to stay comfortable.

Right now:

  • Her pain is better controlled
  • She is very weak and tired
  • She is not eating and drinking much, which is expected
  • She is talking very little, but she can still understand us and respond by squeezing a hand
  • Her body is beginning to slow down normal functions, like urinating

She is not in an emergency at this moment, but she is declining, and this phase usually means time is becoming more limited.”

**********

I’m not suggesting that you should, but if you are inclined to visit, we will welcome that for the time being. Kristi indicated she is open to visitors, even though she really can’t speak much.

If you want to visit please text me or Kristi. I will schedule visits. Please plan a short visit.

So many people have offered to help in some way We can’t explain how grateful we are. At this point we have what we need — and, if and when necessary, we will ask. 


Comments

  1. AnonymousDecember 28, 2025 at 10:34 AM

    What a peaceful picture. The view, the ocean, the sunshine, the smile. Sending peace. -kds

    ReplyDelete
  2. Karen ElliottDecember 28, 2025 at 10:50 AM

    Prayers, love, and hugs for comfort and peace for your loved ones. 🙏♥️🤗✝️

    ReplyDelete
  3. AnonymousDecember 28, 2025 at 10:54 AM

    Hugs and love. Thinking of all of you

    ReplyDelete
  4. Kathleen LandonDecember 28, 2025 at 11:14 AM

    She is very loved.

    ReplyDelete
  5. AnonymousDecember 28, 2025 at 11:26 AM

    I will text you soon 🙏🌷

    ReplyDelete
  6. AnonymousDecember 28, 2025 at 11:27 AM

    Praying for you all. Jim, you’ve have been an incredible example of what it means to love selflessly and faithfully. And Kristi, your strength and joy through such a long and difficult cancer journey has been such a testimony. Even in the hardest seasons, you’ve shown grace, faith, and a beautiful light that has touched so many ❤️

    ReplyDelete
  7. AnonymousDecember 28, 2025 at 11:38 AM

    We are so humbled by witnessing your constant demonstration of love in action. We are sending all our love and prayers as you navigate these next few days. Kristi is such lovely soul and Jim, you have been her rock. Peace be with you all. May love surround you and give you strength.

    ReplyDelete
  8. Janet ZadinaDecember 28, 2025 at 11:38 AM

    I am so sad to hear this. I am so glad she is surrounded by so much love. I know this is so difficult for everyone. I just don’t really have words, but just know that I care very much and sending you lots of love and energy

    ReplyDelete
  9. CarolynDecember 28, 2025 at 12:37 PM

    May God continue to give you the strength you need each and every day. Praying for you both. 🙏❤️🙏

    ReplyDelete

Post a Comment

Popular posts from this blog

Quick ER Trip

We promised no update unless there was an update … so … Kristi developed a very severe headache and her doctor advised us to go to the ER yesterday morning. We went to Stanford where she received IV pain meds, steroids, and electrolytes.  Doc is going to have her take a one week break from the daily pill she takes as part of her current treatment regime — that was our request. We want to know if that is the cause.  Good news: she’s a new women again today.  We hope we can continue to dial things in for best treatment and least side effects. 
Read more

Good Times

Image
Kristi and I took the grandkids for three days to Santa Cruz this week. We had a fun time and it was exhausting. Kristi did pretty well. Took a nap on the beach the first day and powered through the second full day. She was tired and had a headache on the way home. For the most part, she kept up with the busy few days — and we had fun.  We did some research on the way home and decided to change the timing of her daily meds. Since being home and the change she hasn’t had too bad of a headache. Fatigue is always an issue, but at least one that has a simple remedy, sleep. It’s to be expected — mostly side effects of the treatments and probably some from the cancer itself.  The immunotherapy treatments will continue — the doctor called it maintenance —a shot every four weeks and the daily pill. She’ll have scans again in three months. Until then, we expect and hope for no news. So, we won’t likely post unless there are any changes.  As usual we take things one day at a time, ...
Read more

Recent Scan Results

Kristi had both head and full body scans on Monday.  There isn’t much to wax philosophical about.  The doctors called it fairly stable and want her to continue with the immunotherapy treatments.  At this point there isn’t much other choice.  Unfortunately, headaches have taken over as the most prominent problem. Some good news is her back pain has become less of a problem in recent weeks.  We shan’t even try to venture a guess as to why.  She saw her pain management PA today who thoroughly discussed the headaches, prescribed a new drug to try, and will reach out to Dr Ganjoo to fill her in on the problem. Although it may not seem like it from the tone of this post, we were pretty happy about seeing some shrinkage of tumors, especially in the lungs.   Having cancer is one thing, suffering from side effects of it or the treatment is quite another.  She does have days without any headaches — which we relish.  As usual now, we ran the results thr...
Read more