Feeling Better Recently

I wanted to share a quick health update with you since our visit to the ER at Stanford last week.

ER Visit & Headaches

Last week, we ended up in the emergency room because of some intense headaches I’ve been dealing with—sharp, constant, and hard to manage. At times, they’ve come with nausea and light sensitivity, making it difficult to get through the day. The ER team was wonderful—they gave me fluids, medication, and my oncologist bumped up my dexamethasone dose. Thankfully, even though I still have mild headaches each day, they are very manageable.

A few days before the ER visit, I stopped taking Cabometyx (part of the immunotherapy treatment). Since then, my headaches have improved noticeably. After discussing this with the oncologist, she is going to take me off Cabometyx for good and probably put me on something I was taking before. 

ECG (electrocardiogram) Results

As part of my ER visit, I had an ECG. It showed some minor changes—low QRS voltage and nonspecific T-wave changes. Some of the chemo that I have had in the past, and some of my current treatments, can take a toll on the heart. That is another reason they are changing some of the drugs I will be taking. There’s nothing that needs to be done urgently, but they are definitely going keep an eye on it.

Where Things Stand

Right now, I’m continuing with monthly Opdivo injections and still taking my daily meds.  My next scans are in late August, and we’ll have a better sense then of how things are going.  

Jim and I are leaving tomorrow afternoon on a trip that will take us to Panama and Costa Rica for about 12 days. I’m very happy that the headaches have been tamed a little bit so I can enjoy this trip.

Comments

  1. AnonymousJune 29, 2025 at 3:18 PM

    🙏🏻🙏🏻🙏🏻

    ReplyDelete
  2. Merrick BJune 29, 2025 at 3:19 PM

    Very good news about the headaches, though I wish there were none at all. Have a wonderful time on your trip together!

    ReplyDelete
  3. AnonymousJune 29, 2025 at 3:45 PM

    You will love Costa Rica. I can’t wait to hear about Panama and see all your pictures. Glad your headaches are more manageable now.

    ReplyDelete
  4. AnonymousJune 29, 2025 at 3:46 PM

    Praying for a wonderful trip. Love to you both and always praying 🌷🌷

    ReplyDelete
  5. AnonymousJune 29, 2025 at 4:39 PM

    I'm so glad you have good doctors helping you this way. My prayers are for your ability to keep living your best life while you recuperate completely! love, Farah

    ReplyDelete
  6. AnonymousJune 29, 2025 at 5:07 PM

    Please enjoy your trip and we are so happy that you will be able to travel with less headaches and side effects!! Wave hello to the rest of my ankle in Panama! -Patrick and Hope Turner

    ReplyDelete
  7. AnonymousJune 30, 2025 at 12:29 PM

    Have a great trip. I’m glad your health is good enough to go 🤟🏻

    ReplyDelete
  8. AnonymousJune 30, 2025 at 2:22 PM

    That’s fantastic news!!!

    ReplyDelete

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