Red Devil
We are one week past the first infusion of Doxil (liposomal doxorubicin); it's a special version of the doxorubicin that it less destructive to heart muscle. Doxorubicin is nicknamed Red Devil. Red because it has a reddish color and turns the urine reddish for a while. Devil because the devil himself probably wouldn't wish it upon his enemies. It's a powerful chemotherapy that Kristi has had before, twenty years ago for the breast cancer and a few years ago for the lymphoma.
She's had a pretty tough week so far. The side effects come on slowly over a couple days. By Wednesday last week she was in bed, nauseas, unable to eat, mostly asleep all day and night. She has been eating just a little yesterday and this morning.
The tumor pain is also constant and intrusive, as always.
She is scheduled to have these infusions every four weeks until such time as her doctor sees tumor growth and decides it's not helping, or until she herself wants to make changes. It's going to be rough going as long as she is on this regime.
I wish had something more positive to report.
I know you all wish you could do something. That really means the most to us. But in reality, there isn't much to do or that is needed. Our kids are fantastic and will help with anything at the drop of a hat if we ask ... and Danial too (college student), who has lived with us for almost two years now. I think that when she is mostly past the worst of the side effects she'd be happy to hear from you. But, apart from that, life continues to more forward. There are things to do.
We will do another quick update when she's feeling a little better.
If you ask her, Kristi will tell you that Switzerland is her favorite place in the whole world. We visited there in 2006 after she finished her bout with breast cancer treatment. Here’s a picture of us in the Swiss Alps … at Piz Gloria, atop the Schilthorn … where the 1969 James Bond movie On Her Majesty’s Secret Service was filmed.
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ReplyDeleteI love you Kristi! Continued prayers for you.
ReplyDeleteSending hugs, prayers and love. Thank you for updates. We know how to pray. Such a long battle ๐๐
ReplyDeleteThanks for the update…even if it’s not what we are praying for. Always in our thoughts and prayers. Love you Kristi
ReplyDeleteHugs and prayers! ๐๐๐พ
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ReplyDeleteThank you for updating. I’m so sorry that she is suffering. Yes, one feels so helpless. I’m glad you have a wonderful family to help. This is everyone’s battle, but she is having to suffer all this pain. Just sending you love to all of you. JZ
ReplyDeleteContinuing daily prayers for Kristi and all of you. Thank you for the update.
ReplyDeleteHugs and prayers Kristi♥️
ReplyDeleteWe pray for you two often and wish we could send hugs your way. Maybe some salmon? To help all of you feel better and know you are thought of often.
ReplyDeletePraying.
ReplyDeleteLove my cousin. She’s so deserving of the best in life. She’s a truly kind, smart and beautiful person. Please let her know that when she’s up for it, I’d like to come by and spend some time with her.
ReplyDeleteThank you so much for allowing us to be part of this tough journey with you. God bless all of you and may God pour his precious blood over Kristi, remove her pain, and heal her! Amen!
ReplyDeletePrayers & warm hugs sent your way!
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