Treatment Changes on the Horizon

Jim and I have recently returned from a wonderful road trip. We visited 21 states, some of which neither of us had ever seen before. 

The very first day of the trip I had several appointments at Stanford. One of those was to have my PET scans done. We received the results and I met with my LMS specialist to discuss them earlier today. 

There were a couple of results that we enjoyed reading. Namely, most of the tumors in my lungs remain stable. It’s always good news when lung tumors aren’t growing. 

Unfortunately, the good news ended there. The scans found that I have many new subcutaneous tumors in a variety of locations across my body. I’ve had several on my scalp for the past year or two. There are quite a few more there. They’ve also begun growing in several muscles. Perhaps the most disappointing are the numerous new metastases growing in my bones, notably in my vertebrae and hip bones. Those appear to be growing aggressively with many new tumors needing our attention. 

With all of the new growth, it’s been decided that I will change treatments. I’m going to begin chemo infusions with a different type of drug that will hopefully help slow the new growth. The current plan is infusions every 4 weeks, along with some additional meds to combat side effects. One bit of good news is that, like the Votrient I was on previously, this new treatment can be used long-term.

One stop on our trip was Casey, IL — locals say “Cazy” — They are known for having examples of the worlds largest things. Here are a few we saw …








Comments

  1. AnonymousJuly 17, 2024 at 8:27 PM

    Praying each day for you Kristi and for Jim🙏. I certainly enjoyed you little joyride across the US. May God continue bless and keep you in His care. In the meantime enjoy every second 💗💗

    ReplyDelete
  2. AnonymousJuly 17, 2024 at 8:28 PM

    Followed your trip on Facebook and enjoyed each post. Always in my heart and prayers🙏☝️🙏❤️Aunt Mary

    ReplyDelete
  3. AnonymousJuly 17, 2024 at 8:30 PM

    YAY for a treatment, BOO for new cancers. We will shower you with prayers, asking God to surround you, before and aft, up and down, protecting you from any negativity—ANY!! God’s love is so far above our understanding

    ReplyDelete
  4. AnonymousJuly 17, 2024 at 8:32 PM

    Continued prayers!

    ReplyDelete
  5. AnonymousJuly 17, 2024 at 8:41 PM

    We will continue to pray and thank you for always sharing your journey with us.

    ReplyDelete
  6. AnonymousJuly 17, 2024 at 8:47 PM

    Continued thoughts. You are both such an inspiration to all of us. Such love and support for each other. Stay strong ❤️💐

    ReplyDelete
  7. AnonymousJuly 17, 2024 at 8:53 PM

    God answers 🙏 prayers and I know because I see God moving like never before, I will pray for you, love ❤️ you

    ReplyDelete
  8. AnonymousJuly 18, 2024 at 2:20 AM

    Prayers for pleasant surprises and miracles large and small.

    ReplyDelete
  9. AnonymousJuly 18, 2024 at 3:03 AM

    This new treatment can hopefully keep things stable until the cure can be found. I’m so glad you had a wonderful and safe trip and got to see so many friends and family. I’m disappointed you didn’t get down south but maybe in the future. I’m sorry for the bad news you got. Sending love and energy

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  10. AnonymousJuly 18, 2024 at 3:08 AM

    So wonderful you were able to visit. Another awesome trip to so many adventures. We pray every day.

    ReplyDelete
  11. AnonymousJuly 18, 2024 at 5:43 AM

    Continued prayers. You are such a trooper! Sending much love to you both:)

    ReplyDelete
  12. Alicia G.July 18, 2024 at 8:22 AM

    💗

    ReplyDelete

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